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Lyme Disease Links

Introduction

Shades of Grace receives so many inquiries about Lyme Disease and Natalie’s medical treatment that we have found it most helpful to the public if we post this information on our website. We desire to serve in meeting people’s practical needs as well as their spiritual needs. To be spiritually responsible is also to be responsible in practical ways such as learning more information about the risks of acquiring a disease and ways of preventing, identifying and treating it.

Lyme Disease is curable if diagnosed early and treated with a proper course of antibiotics. (Studies now show that at least 4 weeks are necessary due to the life cycle of the bacteria.) However, if left untreated, it advances throughout the body. Lyme Disease is called the “New Great Imitator” because it often mimics many other diseases. There are no medical tests reliable enough to conclusively “rule-out” Lyme Disease. Lyme is a clinical diagnosis. Due to these facts, assisting the public with information about Lyme Disease is something we feel is important.

For comprehensive information on Lyme and other related diseases go to the Lyme Disease Foundation Website. This site contains a wealth of accurate information about Lyme Disease (not always easy to find) and links to other excellent sources of information. (Please do not be misled by your browser into the “American Lyme Disease Foundation” website. The information contained in this site is not as scientifically or medically accurate as the information provided in “The Lyme Disease Foundation” website.)

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Texas

Natalie’s Lyme Disease Statement – The Texas State Senate

To know more about Natalie’s medical experience with Lyme Disease, please read her Lyme Disease Statement and personal account which she read before the Texas State Senate Committee on Administration in March 2000 during the first Interim Hearing on Tick-Borne Diseases in Texas.

Lyme Disease in Texas

Learn more about Lyme Disease and get important links and information here.

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Tick Removal

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Helpful Lyme Disease Websites

Informative websites include:

California Lyme Disease Association

Excellent resource for introductory information about Lyme Disease. Also contains the latest updates regarding research and activism. This site addresses a broad spectrum of needs from basic questions about what to do in the event of a bite to cutting edge research and national policies. Highly recommended!

www.lymedisease.org

Lyme Disease Foundation

Official website of The Lyme Disease Foundation, located in Hartford, Connecticut. Recipient of the NIH Award for increasing public awareness of Lyme Disease.

www.lyme.org

Lyme Disease Network

General overview of Lyme disease, with the latest diagnosis and treatment recommendations. Includes details of support groups.

www.lymenet.org

International Lyme and Associated Diseases Society

International, multidisciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases.

www.ilads.org

Lyme Disease Association

The LDA is dedicated to Lyme Disease education, prevention, and research funding. In its search for a cure for chronic Lyme, the LDA has already funded dozens of research projects coast to coast, some of which are featured in peer-reviewed journals, such as Journal of the American Medical Association, JAMA.

www.lymediseaseassociation.org

Lyme Disease Research Studies

The Lyme Disease Research Program of the New York State Psychiatric Institute is the first in the United States to focus research efforts on the neuropsychiatric aspects of Chronic Lyme Disease in adults and children. Using the vast research resources of the New York State Psychiatric Institute … and of its physically adjacent medical partner, the Columbia Presbyterian Medical Center, scientists at the Lyme Disease Research Program have explored clinical phenomenology, brain imaging, and treatment questions related to chronic Lyme disease.

http://www.columbia-lyme.org

Lyme Info

Articles and extensive directory of information about Lyme disease and other tick-borne infections. Details about Lyme disease symptoms, diagnosis, treatment, and prevention. Advocacy details and peer-reviewed medical literature are also available.

www.lymeinfo.net

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Articles & Abstracts

  • This file juxtaposes photographs and quotations from studies dating as far back as the early 1900’s to show how spirochetes can transform to and from cystic or coccoid forms. The ability of Bb and other spirochetes to exist in coccoid forms provides a cogent explanation for phenomenon such as latency, persistent infection, and seronegativity. A picture is worth a thousand words! 30 pages. Last modified: September 2003
  • (For more articles of this nature see: http://www.lymeinfo.net/lymefiles.html)
  • These abstracts shed light on how Borrelia burgdorferi (Bb) is able to survive antibiotic therapy, and on a primary mechanism underlying post-treatment clinical relapses. They document the ability of Bb to change from a spirochete-form to a “cystic” or coccoid form in response to adverse environmental conditions. The cystic forms can later regenerate spirochetes. 17 pages. Last modified: September 2003
  • (For more articles of this nature see: http://www.lymeinfo.net/lymefiles.html)
  • In a published study (Hajek et al, Am J Psychiatry 2002; 159:297-30 I), one-third of psychiatric inpatients showed signs of past infection with the Lyme spirochete, Borrelia bourgdorferi…
  • 77 peer-reviewed studies showing that Lyme disease can persist or relapse despite antibiotic therapy.
  • Abstracts demonstrating that the tests for Lyme disease and other spirochetal infections can be falsely negative.

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Physician Oriented Lyme Disease Information

(Helpful Info for Patients As Well)

 

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Congressional Record

Issues Regarding Lyme Disease

Speech of the Hon. Christopher Smith of New Jersey in the House of Representatives, Wednesday, September 29, 2010.

Contains the powerful, accurate statement “Patient Perspectives on the Research Gaps in Tick Borne Diseases,” written by three of the Nation’s largest Lyme disease advocacy organizations (Time for Lyme, the national Lyme Disease Association, and the California Lyme Disease Association)

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