Lyme Disease Links
Introduction
Shades of Grace receives so many inquiries about Lyme Disease and Natalie’s medical treatment that we have found it most helpful to the public if we post this information on our website. We desire to serve in meeting people’s practical needs as well as their spiritual needs. To be spiritually responsible is also to be responsible in practical ways such as learning more information about the risks of acquiring a disease and ways of preventing, identifying and treating it.
Lyme Disease is curable if diagnosed early and treated with a proper course of antibiotics. (Studies now show that at least 4 weeks are necessary due to the life cycle of the bacteria.) However, if left untreated, it advances throughout the body. Lyme Disease is called the “New Great Imitator” because it often mimics many other diseases. There are no medical tests reliable enough to conclusively “rule-out” Lyme Disease. Lyme is a clinical diagnosis. Due to these facts, assisting the public with information about Lyme Disease is something we feel is important.
For comprehensive information on Lyme and other related diseases go to the Lyme Disease Foundation Website. This site contains a wealth of accurate information about Lyme Disease (not always easy to find) and links to other excellent sources of information. (Please do not be misled by your browser into the “American Lyme Disease Foundation” website. The information contained in this site is not as scientifically or medically accurate as the information provided in “The Lyme Disease Foundation” website.)
Lyme Disease Statement – The Texas State Senate
To know more about Natalie’s medical experience with Lyme Disease, please read her Lyme Disease Statement and personal account which she read before the Texas State Senate Committee on Administration in March 2000 during the first Interim Hearing on Tick-Borne Diseases in Texas.
Lyme Disease in Texas
Learn more about Lyme Disease and get important links and information here.
Helpful Links
Informative web sites include:
California Lyme Disease Association
Excellent resource for introductory information about Lyme Disease. Also contains the latest updates regarding research and activism. This site addresses a broad spectrum of needs from basic questions about what to do in the event of a bite to cutting edge research and national policies. Highly recommended!
Lyme Disease Foundation
Official website of The Lyme Disease Foundation, located in Hartford, Connecticut. Recipient of the NIH Award for increasing public awareness of Lyme Disease.
Lyme Disease Network
General overview of Lyme disease, with the latest diagnosis and treatment recommendations. Includes details of support groups.
International Lyme and Associated Diseases Society
International, multidisciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases.
Lyme Disease Association
The LDA is dedicated to Lyme Disease education, prevention, and research funding. In its search for a cure for chronic Lyme, the LDA has already funded dozens of research projects coast to coast, some of which are featured in peer-reviewed journals, such as Journal of the American Medical Association, JAMA.
www.lymediseaseassociation.org
Lyme Disease Research Studies
The Lyme Disease Research Program of the New York State Psychiatric Institute is the first in the United States to focus research efforts on the neuropsychiatric aspects of Chronic Lyme Disease in adults and children. Using the vast research resources of the New York State Psychiatric Institute … and of its physically adjacent medical partner, the Columbia Presbyterian Medical Center, scientists at the Lyme Disease Research Program have explored clinical phenomenology, brain imaging, and treatment questions related to chronic Lyme disease.
Lyme Info
Articles and extensive directory of information about Lyme disease and other tick-borne infections. Details about Lyme disease symptoms, diagnosis, treatment, and prevention. Advocacy details and peer-reviewed medical literature are also available.
Articles
Controversies In Neuroborreliosis
http://www.ilads.org/goldings.html
Lyme Disease “Survival in Adverse Conditions”
http://www.lymeinfo.net/medical/LDAdverseConditions.pdf
Studies on the Cystic Form of Borrelia burgdorferi
http://www.lymeinfo.net/medical/LDCysts.pdf
Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses by Joseph J. Burrascano Jr., M.D.
http://www.ilads.org/burrascano_0905.html
Brochure: What Psychiatrists Should Know About Lyme Disease
http://www.ilads.org/PsychiatristsBrochure.pdf
Lyme Disease and Cognitive Impairments
http://mentalhealthandillness.com/Articles/LymeDiseaseAndCognitiveImpairments.htm
Spirochetes On The Brain
http://mentalhealthandillness.com/Articles/SpirochetesOnTheBrain.htm
Physician Oriented Lyme Disease Information (Helpful Info for Patients As Well)
Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses by Joseph J. Burrascano Jr., M.D.
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
The International Lyme and Associated Diseases Society: Evidence-based guidelines for the management of Lyme disease
http://www.ilads.org/files/ILADS_Guidelines.pdf
ILADS Treatment Guidelines Summary
http://www.ilads.org/lyme_disease/treatment_guidelines_summary.html
What You Should Know About Lyme Disease
http://www.ilads.org/lyme_research/lyme_articles6.html
Autism and Lyme Disease Are Connected, Lyme-Induced Autism Study Finds
http://www.ilads.org/lyme_research/lyme_articles1.html
Congressional Record
Issues Regarding Lyme Disease
http://thomas.loc.gov/cgi-bin/query/z?r111:E29SE0-0367:
Speech of the Hon. Christopher Smith of New Jersey in the House of Representatives, Wednesday, September 29, 2010.
Contains the powerful, accurate statement “Patient Perspectives on the Research Gaps in Tick Borne Diseases,” written by three of the Nation’s largest Lyme disease advocacy organizations (Time for Lyme, the national Lyme Disease Association, and the California Lyme Disease Association)
